Our customer in rare diseases

Customers CSL logo

Diagnosing, treating and managing complex and unpredictable rare diseases can be challenging for providers.

Today, forward-looking biopharma companies are developing digital solutions for rare diseases to help providers and patients diagnose, treat and manage rare diseases.


Rare diseases


people globally affected


patients lack a viable treatment option

Challenges along the patient journey


Because the conditions are so uncommon, providers often lack experience diagnosing patients with a rare disease. That means the road to diagnosis can be long—and frustrating. Patients may go years before receiving a diagnosis and getting the care they need.


Depending on the disease, there can be quite a bit of trial and error to find the right treatment and dial in the right dose. Then, once it’s identified, patient adherence to their drug regimen is paramount—and not guaranteed.


Rare diseases are often lifelong chronic conditions that require complex and personalized treatments, as well as lifestyle modifications. And patients managing rare diseases often face geographic barriers to accessing care from providers who specialize in their condition.

Profile Brian Johnson

CSL Behring’s patient population includes patients with rare and serious diseases. Many of our patients’ therapies are administered subcutaneously, requiring patients to take a very active role in administering and tracking their infusions. Improving treatment experiences through digital technology has been a focus for CSL Behring and is even more critical now during the ongoing global COVID-19 pandemic."

Brian Johnson

Senior Director, Customer Engagement Management, CSL Behring

Explore the Platform

BrightInsight's integrated digital solutions can unlock better care in rare diseases

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Faster patient

Powerful algorithms hosted on the BrightInsight Platform® give providers the insights they need to diagnose patients more quickly and accurately and match them with the right therapy as soon as possible.

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App-powered patient adherence

We quickly and easily stand up patient-facing apps that help patients track symptoms and quality of life, keep track of medications, share information with their providers and schedule care when they need it.

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Fine-tuned treatment and dosing recommendations

Treatment selection algorithms can leverage vast patient- and population-level data sets to provide instant recommendations. And digital tools like dosing calculators can help prescribing physicians tailor treatments to maximize the therapeutic benefits.

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Comprehensive disease management

The combination of a patient app and a robust clinician portal gives providers the valuable data they need to better manage a patient’s condition. Secure communication enables collaboration with other members of the care team.

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Case Study

CSL Behring: Targeting improvements in patient adoption and retention

Read how the Hizentra app, built on the BrightInsight® Platform, gained high user adoption and an 89% retention rate from 90 days to 12 months.

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Case Study

CSL Behring: Supporting hemophilia B patients on a journey toward a life-changing gene therapy treatment

Read the case study to learn how BrightInsight took CSL Behring from project kickoff to B SUPPORT app launch in just four months.

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Rare diseases digital resource library

Let’s talk about how you can speed time to value.

Contact us today to start a conversation about how BrightInsight can help on your digital health journey.

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