Our customer in rare diseases

Customers CSL logo

Diagnosing, treating and managing complex and unpredictable rare diseases can be challenging for providers.

Today, forward-looking biopharma companies are developing digital solutions for rare diseases to help providers and patients diagnose, treat and manage rare diseases.

Stats rare diseases virus

6,000+

Rare diseases

Stats rare diseases globe

300M+

people globally affected

Stats rare diseases patient

90%+

patients lack a viable treatment option

Challenges along the patient journey

arrows graphic

DIAGNOSIS

Because the conditions are so uncommon, providers often lack experience diagnosing patients with a rare disease. That means the road to diagnosis can be long—and frustrating. Patients may go years before receiving a diagnosis and getting the care they need.

DOSE MANAGEMENT & ADHERENCE

Depending on the disease, there can be quite a bit of trial and error to find the right treatment and dial in the right dose. Then, once it’s identified, patient adherence to their drug regimen is paramount—and not guaranteed.

DISEASE MANAGEMENT

Rare diseases are often lifelong chronic conditions that require complex and personalized treatments, as well as lifestyle modifications. And patients managing rare diseases often face geographic barriers to accessing care from providers who specialize in their condition.

Profile Brian Johnson

CSL Behring’s patient population includes patients with rare and serious diseases. Many of our patients’ therapies are administered subcutaneously, requiring patients to take a very active role in administering and tracking their infusions. Improving treatment experiences through digital technology has been a focus for CSL Behring and is even more critical now during the ongoing global COVID-19 pandemic."

- Brian Johnson, Senior Director, Customer Engagement Management, CSL Behring

arrows graphic

BrightInsight's integrated digital solutions can unlock better care in rare diseases

Rare diseases icon faster patient diagnosis

Faster patient
diagnosis

Powerful algorithms hosted on the BrightInsight Platform® give providers the insights they need to diagnose patients more quickly and accurately and match them with the right therapy as soon as possible.

Rare diseases icon app powered patient adherence

App-powered patient adherence

We quickly and easily stand up patient-facing apps that help patients track symptoms and quality of life, keep track of medications, share information with their providers and schedule care when they need it.

Rare diseases icon fine tuned treatment and dosing recommendations

Fine-tuned treatment and dosing recommendations

Treatment selection algorithms can leverage vast patient- and population-level data sets to provide instant recommendations. And digital tools like dosing calculators can help prescribing physicians tailor treatments to maximize the therapeutic benefits.

Rare diseases icon comprehensive disease management

Comprehensive disease management

The combination of a patient app and a robust clinician portal gives providers the valuable data they need to better manage a patient’s condition. Secure communication enables collaboration with other members of the care team.

Request a Demo

Case Study

CSL Behring: Targeting improvements in patient adoption and retention

Read how the Hizentra app, built on the BrightInsight® Platform, gained high user adoption and an 89% retention rate from 90 days to 12 months.

Read Now
Case study CSL phone screenshots stacked v2

Rare diseases digital resource library

hands holding tablet

See the power of the Disease Management Solution for yourself

Contact us to set up a demo today.